It takes a village to care, is the old adage. Family, friends, church groups, neighbours, schools and support groups are all playing an important role in helping people to care for the dying at home.
“I couldn’t have done it without the help and support of everyone here,” said Leanne, a participant in the ARC Caring at end of life study who cared for her loved one at home in his final weeks.
Associate Professor Debbie Horsfall and a team of researchers from the University of Western Sydney, Calvary Centre for Palliative Care Research ACT, CSIRO and Cancer Council NSW are currently conducting research with carers in order to better understand what happens when people come together to care. The team has already spoken with health professionals and end of life service providers and now they want to talk with carers.